PROGRAMA DE PÓS-GRADUAÇÃO EM SAÚDE COLETIVA - PPGSC
URI Permanente desta comunidadehttps://tedebc-teste.ufma.br/handle/tede/882
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Navegando PROGRAMA DE PÓS-GRADUAÇÃO EM SAÚDE COLETIVA - PPGSC por Autor "ALVES, Rosana"
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Item Cuidados oferecidos a crianças elegiveis para cuidados paliativos em ambiente hospitalar(Universidade Federal do Maranhão, 2018-12-19) LIMA, Sara Fiterman; SOUZA, Tadeu de Paula; 055221367-00; http://lattes.cnpq.br/9097512115715636; LAMY, Zeni Carvalho; 128326933-34; http://lattes.cnpq.br/9896819318523369; LAMY, Zeni Carvalho; 128326933-34; http://lattes.cnpq.br/9896819318523369; ALVES, Rosana; http://lattes.cnpq.br/5958737240424992; GARCIA, João Batista; http://lattes.cnpq.br/0424234103760462; ALVES, Maria Teresa Seabra Soares de Britto e; http://lattes.cnpq.br/3910533965773430; SIMÕES, Vanda Maria Ferreira; http://lattes.cnpq.br/4024829764707677The study sought to analyze the care offered to eligible children for palliative care in a hospital environment. This is an exploratory study, with a quantitative and qualitative approach, carried out in 04 hospitals of the network of public institutions with hospitalization care for children in the municipality of São Luís - Maranhão. The universe of the study was composed of children hospitalized in the hospitals during the period of data collection. Using the inclusion criteria to be between 0 and 9 years old, potential indication for palliative care according to service professionals and to fall into one of the 04 groups of conditions eligible for pediatric palliatives of the Association for Children Palliative Care, emerged 133 children, that went through an expert evaluation for the application of non-inclusion criteria - not being eligible and being in final moments of life - according to the opinion of this professional. Thus, study participants were 131 children eligible for palliative care, their primary caregivers, and the professionals who provided care. The techniques for collection were interviews, participant observation and documentary analysis. From this sample, the case study of 09 children was carried out. The results are as follows: The profile of the public network for pediatric palliative care in the municipality; The socio-demographic profile of children and caregivers; The characterization of the clinical conditions of these children; The evaluation of the dynamics that involves the provision of palliative care in one of the hospitals. The process of indicating palliative care in pediatrics allows different understandings. Eligible children also had other diagnoses that helped the palliative indication. Social issues were present and fragmented care. Spirituality can help or serve as a barrier to care. Mourning care still comes down to the moment of death, with guidelines for funeral procedures. Several misunderstandings interfere in practice. We conclude that findings point to the need for investments in the training and preparation of professionals, for the sharing of decisions among the members of the team, for the rapprochement with the relatives and the reception of their symptoms of suffering, for the inclusion of this family and child in the decision-making, and to broaden the focus of care, understanding family and death as an integral part of the care process.Item EXPERIÊNCIAS VIVIDAS POR PROFISSIONAIS NO PROCESSO DE TRABALHO COM CRIANÇAS EM CUIDADOS PALIATIVOS.(Universidade Federal do Maranhão, 2019-02-26) MOREIRA, Jacqueline Dutra Nascimento; LAMY, Zeni Carvalho; http://lattes.cnpq.br/9896819318523369; LEMY, Zeni Carvalho; http://lattes.cnpq.br/9896819318523369; ALVES, Rosana; http://lattes.cnpq.br/5958737240424992; ALVES, Maria Teresa Seabra Soares de Britto e; http://lattes.cnpq.br/3910533965773430; CARVALHO, Ruth Helena de Souza Britto Ferreira de; http://lattes.cnpq.br/6914279050780248Pediatric Palliative Care (CPP) includes total pediatric care in the body, mind and soul, and family support. Tending its onset when a serious illness is diagnosed and continues to be a curatorial cure process. They are based on multiprofessionality and interdisciplinarity focused on evaluating and alleviating the physical, psychological, social and spiritual exercise of the child and his / her family. The objective was to understand the experiences experienced by professionals in the process of working with children in palliative care. This is an exploratory study of a qualitative approach of the phenomenological type, carried out in a university hospital from March to May 2018. The sample was chosen with the intention of involving 32 professionals from the research sector. The analysis of the ideas was carried out in search of the work process in health, contemplating like Van Manen visions. The themes that emerged were: Fragilities, disagreements and contradictions in the presentation and offer of palliative care and facilitating initiatives in palliative practice. The understanding of the lived experiences made possible the understanding of a knowledge about the association of concepts and contradictions in palliative care. Palliative Care was introduced in a terminality, to abandonment and euthanasia. Where an denial of the natural process of death prosers, it may result in the adoption of a futile treatment. The occurrence of the biomedical model and the fragmentation of care that led, in some situations, to the work process, was adopted for decision making and for the child and his family. However, as experiences have already been promoted by the integration of knowledge, and the incorporation of new tools in daily care, which promote a user-centered approach with respect to their subjectivity. It is necessary, changes in the logic of the work processes in health, in search of a collaborative work, with emphasis on the protagonism of the user, valorization of the worker and extension of the clinic.